Surviving a Pandemic with Cystic Fibrosis
During the pandemic lockdowns in 2021, I was able to take a course in remote filmmaking which would not have existed if it weren't for the pandemic. I learned how to work with someone remotely to get their sound, background, and lighting acceptable for recording. During this course, I made my short film Surviving a Pandemic with Cystic Fibrosis.
Living with CF and trying to avoid Covid-19 have so many parallels. We already wore masks in high risk places such as airports and hospitals, we already took hand sanitizer everywhere, and we couldn’t meet other people with CF in person because of the risk of cross infection between CF lungs. We’re also a high risk population, so we became more vigilant than ever before.
When the pandemic hit, we were all, globally, catapulted into the conditions long-advised for people with CF. Creatives around the world came up with all sorts of fantastic ways to continue to make art together, and remote techniques for communication and documentation were developed, advanced and discussed.
Many people with CF frequently need hospital inpatient treatment, but still have the capacity for work. We previously had to take long periods of time off from work or school during these times. The global adoption of remote access highlighted the societal nature of this access barrier as it was suddenly removed.
“I hope that the public awareness around reducing virus spread, I really hope that that will stay. I don't think people really thought about the fact that it's not just about them, it's about affecting other people.”
Kim, 2021
“Everything that everyone’s going through with the pandemic is how our lives have been forever. I really hope we come out of this pandemic with more inclusion for chronic illness”
Katrina, 2021